|Collaborative online children's storybook starts conversations about little-understood disease - 02/14/2017 10:29 PM|
For many families with children living with tuberous sclerosis complex (TSC), a serious genetic disorder, this scene may be all too familiar. Scott's story is a part of an online children's storybook about a young boy with TSC as seen through the eyes of his favorite toy, a stuffed dog named Turbo.
This eBook, called "Turbo and Scott," was developed to help foster discussion with kids, family members and friends about this complex disease in an accessible way. In addition to highlighting the duo's everyday adventures, the story, written by children's author John Grandits, addresses some of the challenges children with TSC may face, from frequent doctor visits to living with skin lesions and seizures.
Also known as tuberous sclerosis (TS), TSC a...
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